Tag Archives: support group

Norton Hospital Neuroscience Institute

Neuroscience Expo – Louisville, KY

2016 Neuroscience Expo: Making Connections
Saturday, July 23, 2016 • 8 a.m. to 1 p.m.
Kentucky International Convention Center
221 S. Fourth St., Bridgeside lobby
Louisville, Kentucky
Complimentary valet parking will be available at the Fourth Street entrance.

Don’t miss the 2016 Neuroscience Expo, hosted by Norton Neuroscience Institute. This free event is your chance to hear the latest information about treatments and support for epilepsy, migraines, multiple sclerosis and Parkinson’s disease. Life skills workshops for coping with neurological conditions also will be offered.

Larosa Loop – Louisville, KY

The Larosa Loop is a non-competitive run/walk/wheel event at the Louisville Waterfront.

The 2016 Larosa Loop will raise funds to enhance and expand patient programs and services at Frazier Rehab Institute.

The Larosa Loop will take place at the Louisville Waterfront, 1301 River Road. Run/walk/roll participants can choose a 1-, 3-, or 5-mile route. Registration begins at 8 a.m. The Run/walk/wheel starts at 9 a.m.

*The Larsoa Loop will also have music, games, snacks, raffles and booths for sponsors and vendors to showcase their products or services.

Get Involved, Make a Difference – 3rd Annual KCSCI Conference is Coming



The 3rd annual Kentucky Congress on Spinal Cord Injury (KCSCI) is taking place June 18, 2015 from 9 AM to 4 PM at the Marriot Griffin Gate Hotel in Lexington, KY.

A Few of the Featured Invited Speakers and Preliminary Agenda for the 3nd Annual KCSCI (June 2015):

• Heidi Johnson-Wright and Steve Wright are experts in Universal Design, ADA in built environment, advocacy for Inclusive Design – as it relates to rural communities. Johnson-Wright is an ADA compliance professional and attorney with over 30 years of public speaking experience. Steve Wright has expertise in universal design, master plans, zoning codes, walk-ability, sustainability, architecture, transportation and public policy.
• Lindsey Mullis will present on fitness for people with mobility impairments. Mullis is the Health & Wellness coordinator for the Human Development Institute at the University of Kentucky.

This is a great opportunity for those in the surrounding area to be part of an organization dedicated to legislation and advocacy of the SCI community of Kentucky.

To learn more, or to register for this FREE event visit


Why This is Important

Just like anything else, focus of organized effort usually congregates around large metropolitan areas, leaving the smaller, urban areas exposed to unlawful practices, lack of quality assistance, organized care and support programs, but this is where KCSCI comes in.

KCSCI released the following statement:

“Organizations, outreach programs and specialized medical care providers for individuals living with chronic spinal cord injury (SCI) in the Commonwealth of Kentucky have traditionally been unorganized and without a common mission. Importantly, while current outreach efforts appear to have some impact for SCI individuals in urban areas, we wish to build cohesion among this community of individuals throughout the commonwealth by expansion into the more rural areas. We envision congress participants, sponsors, healthcare providers and care givers all exchanging information about programs available to those in need throughout the commonwealth. The community of individuals with SCI and their support systems can be a strong advocacy group given the right organizational structure.”


The mission of the Kentucky Congress on Spinal Cord Injury (KCSCI) is to gather individuals with SCI from around the commonwealth to join in the discussion of critical issues that are important to them and to help draft agendas to be used to legislate changes in our commonwealth for people with SCI. The members of the KCSCI should be strong advocates for the rights of all people with disabilities and be willing to provide peer mentoring for newly injured folks who may need additional support.


•    We have formed an Advisory Board Committee Meeting whose charge it is to identify the top principal concerns of the SCI community that the KCSCI can help (for more information, visit www.karrn.org)
•    Based upon expert advice and careful thought, we have chosen not to file for nonprofit 501c3 status.
•    Our recognition is expanding as we continue to increase our network of people with SCI in the Commonwealth of Kentucky. We have an interactive Face Book page and we’re developing a website.
•    After the recent snow storms, we collectively contacted local councilmen and businesses to bring to their attention that the inadequate/improper snow removal from handicapped parking spaces was in violation of laws, in particular for vehicles with ramps requiring room. Fellow member David Allgood also helped us advance this legislation in the Capitol.

For more information you can contact KCSCI President, Jason Jones at jpjones@twc.com or visit their Facebook page at https://www.facebook.com/KCSCI

Spina Bifida of Kentucky Walk n roll

Walk n’ roll – Spina Bifida of Kentucky

The 2014 SBAK Walk-N-Roll for Spina Bifida has two locations this year! Both events will be held on Saturday, October 25th, 2014.

Louisville- Verterans Memorial Park in Jeffersontown
Lexington – Shriners Hospital for Children

This family-friendly, leisurely walk creates awareness about Spina Bifida, raises funds for SBAK, and celebrate the accomplishments of the families living with Spina Bifida in Kentucky. All proceeds are used for SBAK’s free programs and services.

Registration for the 2014 Walk-N-Roll will begin at 9:30am on Saturday, October 25th at both locations. During this time, we will collect all pledged and new donations.

wheelchair tn logo

Ms. Wheelchair Tennessee Pagent

The Ms. Wheelchair Tennessee organization is proud to announce the contestants for the upcoming crowning ceremony to be held on March 22, 2014 at the Crowne Plaza Hotel in bustling downtown Knoxville, Tennessee! The following women and young ladies will be competing for the title of Ms. Wheelchair Tennessee, Junior Miss Wheelchair Tennessee, and Little Miss Wheelchair Tennessee 2014.

Amanda Northrup, of Cleveland is a mother and fitness enthusiast. She is focused on promoting health and fitness for individuals with disabilities. April Warren, of Alcoa works as a customer service representative and studies medical coding. Her goal is to advocate for access to medical care for individuals with mobility disabilities. Amanda Szidiropulosz, also of Cleveland is an elementary music teacher at Charleston Elementary school system. She would like to create a “no limits” mindset for individuals with disabilities. Kaylee Arrowood, of Johnson City is a Girl Scout, a member of her high school Sparkle squad, and does not like missing even one day of school. Kaylee wishes to educate individuals about what it is like to be an active youth with a disability. Skylar Vaughn-Hisey, of Ooltewah is a grandpa’s girl who loves sports and her music class at school. She is excited to make new friends and to be involved with the Ms. Wheelchair Tennessee organization.

Each competitor will be interviewed by a panel of judges and participate in workshops which are both educational and fun. At the close of the evening, we will crown our new titleholders for 2014. These ladies will go on to participate in activities throughout the year which allow them to present their chosen platforms to groups across the state of Tennessee. The woman chosen to be Ms. Wheelchair Tennessee will also have the opportunity to travel to Long Beach, California this August to compete for the title of Ms. Wheelchair America 2015. It is a prestigious title and another opportunity to travel and speak on behalf of her community to promote awareness and positive change to the lives of all Americans.



Inspiring Abilities Expo

The expo offers families and professionals a great opportunity to network with organizations and service providers who meet the unique needs of children with disabilities. Six speakers will be scheduled throughout the day, so expo attendees can browse the exhibit hall, then take some time to listen to presentations that are relevant to their own child and family. Sessions will be available for all age groups, so families with young children can learn as much as families whose children are transitioning from high school to adult life.

We will also feature various demonstrations during the day so families can see firsthand some of the fun services and programs available to their children.